Naveed and Samiya’s journey started when Diamo was born in 2003. He had a difficult birth, which led to a diagnosis of cerebral palsy. Sadly, Diamo passed unexpectedly in 2012 at the age of 9.
Diamo was diagnosed as having severe developmental delay, he was quadriplegic and had very little head control. He needed extensive treatment to help him with basic functions such as eating, sitting and looking around, which included him having a multitude of orthotics, braces and gators; DAFOs, hand splints, spinal braces and compression garments.
They were often surprised and frustrated that there was little evidence or data on their son’s conditions and clinicians often found it difficult to explain how Diamo may develop over time. The constant clinic appointments, dis-jointed care, therapy, castings and fittings caused him and the family great distress and anxiety.
This is why we deeply understand that it is the entire family lives with Cerebral Palsy and by focussing on the family’s care experience that we can radically reimagine what is possible.
Rachel’s Story – It has made a big difference to my life
With Cerebral Palsy affecting the left side of her body, Rachel has been wearing braces since the ag...
